Congressman Pete King Supports Improved Treatment for Childhood Illnesses
Those of us who are fortunate to have healthy children and grandchildren must always remember those children who do suffer from serious and debilitating illnesses. During my time in Congress I have consistently supported increased funding for research to find cures and improved treatment for childhood illnesses. It is important when dealing with legislative proposals for children's illnesses that we address Rare Diseases as well. I am a member of the Rare Diseases Caucus and work with the Rare Diseases Legislative Advocates (RDLA) in Washington, DC to accelerate biotech innovation for rare disease treatments through science-driven policy. I am proud to have received an A++ rating on RDLA's most recent Congressional Scorecard. This week I met Maria-Elaina Garcia, a Levittown resident, who is Executive Assistant of Jonah's Just Begun which is a medical research foundation focused on treating Sanfilippo Syndrome an extremely fatal genetic disease. While some progress has been made, much more remains to be done and the financial costs will be enormous. Passage of the 21st Century Cures Act will provide significant assistance. I strongly support this legislation and voted for it when it passed the House. The bill now awaits action in the Senate. It is important that this legislation pass and be signed into law.